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The CHF and Build A Bear Workshop National Partnership

February 15, 2013
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The Children's Heart Foundation Build a Bear

The Children’s Heart Foundation is a fabulous organization aimed at bringing “health, hope, and happiness to children impacted by Congenital Heart Defects.”  Their goal is to make this happen by funding research for diagnosis, treatment, and prevention of CHD. We love The CHF, and everything they do to help our children survive. The Children’s Heart Foundation and Build A Bear Workshop National Partnership is in its fourth consecutive year.  Build A Bear has created an opportunity for all of their guests to make a contribution to CHF when they complete their purchase during the month of February. This is a great CHD Awareness activity for all families impacted by CHD. Here is how it works: Visit any one of Build A Bear Workshop’s over 300 stores throughout the United States. ( www.buildabear.com/locations ) Select a lovable & cuddly item. Stuff the item, make a wish & place the heart inside. Select clothing or any other accessory Create a “birth certificate”. Proceed to checkout. While at checkout, you will be asked if you wish to make a $1 contribution to CHF, thereby helping fund the most promising congenital heart defect research, “Saving Children’s Lives – One Heart at a Time”. Thanks […]

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Growing Number of CHD Moms Giving Birth

February 9, 2013
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There is a growing number of more moms giving birth, despite having a Congenital Heart Defect. Think about this for a minute. Do you understand the importance of this? When we look at the medical advances in the past 10, 20, 30, and even 40 years, we know that many children who are surviving into adulthood would not have made it to their first birthday, or even past their first week, or day of life. Now we see these children growing up. The number of moms giving birth is growing due to the fact that there more children surviving CHD every single day. When we know that a pregnant mother, born with a Congenital Heart Defect can have Open Heart Surgery, while pregnant, we can…

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MLH Funds CHD Research for Heart Month

February 1, 2013
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As you may know, February is Heart Month and February 7-14 is Congenital Heart Defect (CHD) Awareness Week (officially recognized in many cities, counties and states).  We at Mended Little Hearts were thinking, “How can we make a bigger difference for children with CHD and their families this Heart Month?”  We thought a lot about what we were working so hard to create awareness for and why. One of the main things we create awareness for is CHD research funding, right?  We all know it is underfunded and therefore too many of our kids are having problems and some are becoming angels way too soon.  So, we decided to do something about it and fund research this year. We then decided that we didn’t just want to fund…

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Join Mended Little Hearts for a Live Twitter Chat to Kick Off CHD Awareness Week 2013

January 22, 2013
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February 7-14th is Congenital Heart Defect Awareness Week. 1 in 110 babies are born with a CHD, making it the number one birth defect. Join us on Thursday February 7th, 2013 at 1pm est for Live Twitter Chat as we Raise Awareness. We will be sharing CHD Facts and stories. Many people are unaware how common Congential Heart Defects are, if you or some one you know has been impacted by Congenital Heart Defects, join us and share your story. Every time we share our stories we are helping others cope, and we are closer to a day when everyone will know CHD and see a cure. You can find us on Twitter @MLH_CHD we will be using the hashtag #CHDAware, so look for that…

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Lauren Gray our CHD Awareness Chair is Surviving CHD

December 30, 2012
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Lauren Gray our CHD Awareness Chair is Surviving CHD

You can’t tell it to look at me, but I have had 4 bouts of pneumonia, 5 catheterizations, 2 open heart surgeries, numerous blood transfusions, countless iv’s, ekg’s, echocardiograms, x-rays, trips to the cardiologist or ER and have taken a plethora of antibiotics in my 40 years. I’ve had many otherwise minor health issues compounded by my heart defect but, the reality is that I am one of the lucky ones. I was born with Tetralogy of Fallot in a rural town in North Carolina. They were not equipped to handle my condition so I was sent to a medical school in a larger town where they performed what was supposed to be a temporary repair. That temporary repair lasted for 17 years with minimal…

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Neurodevelopmental Issues and CHD – Webinar

November 2, 2012
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This webinar on Neurodevelopmental Issues and CHD is hosted by Mended Little Hearts and presented by Dr. Brad Marino of Cincinnati Children’s Hospital. It took place live online on September 7, 2012.


Neurodevelopmental Issues and CHD from Jodi Lemacks on Vimeo.

 

 

Say Thank You to Your CHD Child’s Cardiology Team, FREE Printable!

October 25, 2012
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The next time you head off to see your CHD Child’s Cardiologist, pediatrician, or pack for surgery, print off some of these sweet Thank You slips.

Print them off on card stock, cut the page into quarters and have your child sign, or color on the back of it. Tape a Hershey’s Kiss to each card and pass one to the nurse taking care of your child. My experience says that everyone loves chocolate! Don’t forget to pass one to the X-ray, Echo, or Packemaker tech!  After surgery, when you are seeing the same housekeeping and cafeteria staff in your child’s room, pass one to them too. Everyone who takes care of your child during visits or hospital stays can get a sweet Thank You from your family! Read more »

Back to School ABC’s for CHD Kids

September 24, 2012
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Mended Little Hearts and CardioSmart have joined together to provide parents and caregivers of children who have congenital heart defects with some back-to-school tips. Most children are now officially back to school for the 2012-2013 school year.   Whether your child is in preschool or grade school, if your child has a congenital heart defect (CHD), there are a few things you may want to consider for the beginning of this school season.   Plan for Emergencies Written Plan:  Parents and caregivers want to be sure to communicate a plan for emergencies with the child’s school administration, teacher(s), and school nurse (if your school has one).  Work with your child’s cardiologist to create this plan.  It would also be helpful to get input from your child’s…

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Nicole Sanchez is Surviving CHD

August 25, 2012
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My name is Nicole Sanchez and I was born on January 4th, 1983 with tricuspid atresia. With TA also comes normally related great arteries with a small ventricular septal defect and rudimentary right ventricle. Basically this means that I was born without a tricuspid valve, and because the valve did not form, neither did my right ventricle. I had two closed-heart surgeries as a baby including a BT shunt placement. In November of 1988, I had open-heart surgery, a Fontan procedure. Since my Fontan, I have been fortunate enough to not need any more surgeries. I do see a cardiologist every year for an EKG and Echo, and there’s the occasional heart monitor or stress test, but so far, so good…Not to say there haven’t…

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