4th Annual CHD Symposium

June 25, 2010

July 16 & 17, 2010, Madison, WI

Parents and Caregivers, come learn and network with other families of children with Congenital Heart Defects. Learn the latest in medical advances, how to navigate the insurance maze, growing-up with CHD and much more…

Friday, July 16, 6:30 p.m. – 8:30 p.m., Ice Cream Social, American Family Children’s Hospital

Saturday, July 17, 2010, 8 a.m. – 4:30 p.m., Conference, Monona Terrace and Convention Center

Presented by:

Mended Little Hearts and Saving Little Hearts

American Family Children’s Hospital and the UW Department of Pediatrics

With Additional Sponsorship from:

Kohl’s, St. Jude Medical and the American Heart Association

  • Cost: Because of the generosity of our sponsors, there is no cost to attend this conference.
  • Meals: Some light snacks will be offered at the conference, however meals will be on your own. You are welcome to purchase a boxed lunch on site at the conference or go out for lunch at one of the many restaurants that are within walking distance of Monona Terrace. We apologize, but no outside food is allowed at the Monona Terrace Convention Center.
  • Childcare: Complimentary childcare will be provided on site. Please be sure to let us know in advance if your child has any special needs, food allergies, etc.
  • Overnight Accommodations: Stay over night on Friday, July 16 or Saturday, July 17 at the new Hyatt Place in Downtown Madison for $99/night (reservations are required by June 16). Book online at: http://hyattplace.lodgeworks.com/?id=MEN Please see below for details.
  • Conference Parking: Complimentary parking will be available in the Monona Terrace Ramp. There are many events happening in downtown Madison on Saturday morning, July 17 so please allow for plenty of time to park. For those staying overnight at the Hyatt Place, parking is available at the hotel and there will be a complimentary shuttle to the event.
  • Register on-line by Wednesday, June 30. Link to on-line registration.

Ice Cream Social

Friday, July 16, 2010

6:30-8:30 p.m.

American Family Children’s Hospital Lobby

1675 Highland Ave.
Madison, WI 53792

Meet us on “Wisconsin Avenue” at American Family Children’s Hospital for an informal gathering.

Complimentary parking will available in the American Family Children’s Hospital Parking Ramp


Saturday, July 17, 2010

Monona Terrace Community and Convention Center

One John Nolen Drive
Madison, WI 53703


8 a.m. Registration & Networking

8:45-11:15 a.m.     Medical & Health Care Focused Educational Sessions

Noon – 1:30 p.m. Lunch (pre-paid box lunch or on your own)

1:30-4:30 p.m. Personal & Family Focused Educational Sessions

Confirmed Topics & Speakers:

  • “New Hope for Families,” J. Carter Ralphe, MD, Pediatric Cardiologist, American Family Children’s Hospital,

Dr. Ralphe will share a general perspective on new trends in treating CHD and an update about incorporating these advances at AFCH.

  • “Imaging and Beyond,” John S. Hokanson, MD, Pediatric Cardiologist, American Family Children’s Hospital,
  • “Neurocognitive development of children with CHD,” Peter Ferrazzano, MD, American Family Children’s Hospital
  • “Moving On… Transitioning from the Pediatric to the Adult Care Team,” Darcy Pfiel, NP, Craig Becker, Senior Clinical Social Worker, UW Hospital & Clinics, This session will discuss the philosophy regarding transition, as well as provide a checklist for patients and families to prepare for transition from pediatric to adult care.
  • “What Health Care Reform Means for Families with Chronic Illness,” Jessica Gilkison, JD, Patient Advocate, UW Center for Patient Partnerships
  • “Communicating with the Schools” Rachel Gallagher, MS, CPNP, NCSN, DPI School Nurse Consultant Ms. Gallagher will briefly describe the educational accommodations available to students in the public school system, school nursing services, Section 504 of the Rehabilitation Act and Individual with Disability Education Act.
  • “Advocating for your child, a parent’s point of view,” Jodi Lemacks, JD, National Program Coordinator, Mended Little Hearts
  • “Congenital Heart Defects – A Life-long Disease,” Amy Verstappen, CEO, Adult Congenital Heart Association
  • “Sending your child to school,” Deb Gerrits, mother of child with congenital heart defect, Mended Little Hearts
  • “Coping with the Stress of Child with Chronic Illness, Guided Meditation,”  Karen Allaire, American Family Children’s Hospital This presentation will provide an introduction to Mindfulness Based Stress Reduction with a short interactive lecture and guided experience of one of the techniques.


Hyatt Place Madison/Downtown

333 West Washington Avenue
Madison, WI 53703, USA
Phone: +1 608 257 2700 Fax: +1 608 257 1660


To book your reservations at the hotel

  • The room rate is $99 per night, and in order to book the hotel at this rate, you must make your reservations by June 16, 2010.
  • Please call 1-888-492-8847 or 608-257-2700, or to book directly online visit http://hyattplace.lodgeworks.com/?id=MEN
  • Make sure to register mentioning that you are a participant in the Mended Little Hearts Conference.
  • Ideally situated in the heart of downtown, the Hyatt Place Madison/Downtown is surrounded by museums, theatres, restaurants and shopping.

Hotel Amenities:

  • The Madison hotel is within walking distance to the Monona Terrace Convention Center.
  • There will be a shuttle available in the morning for conference participants to assist with transportation to Monona Terrace.
  • Complimentary Wi-Fi available throughout the hotel.
  • Complimentary continental breakfast daily.
  • $10/day covered parking available.
  • All Hyatt Place hotels are smoke-free.

Driving Directions To Hyatt Place

  • Directions from Dane County Regional Airport (MSN): Head north on International Lane and follow toward Terminal. Turn left on Packers Avenue/ WI-113 South. Continue to follow WI-113 S. Turn left on North 1st Street (WI-113 S). Turn right on East Washington Avenue/US-151 South. Continue to follow E Washington Ave and turn right on North Webster Street. Turn left on East Dayton Street. Turn left on North Fairchild Street. Turn right on West Washington Avenue. Hyatt Place Madison/Downtown is on the right.
  • Directions from I-94/I-90 (Chicago/Milwaukee): From I-94/I-90, keep left to take WI-30 West toward Madison. Merge onto East Washington Avenue toward State Capitol. Turn right on North Webster Street. Turn left on East Dayton Street. Turn left on North Fairchild Street. Turn right on West Washington Avenue. Hyatt Place Madison/Downtown is on the left.
  • Directions from I-94/I-90 (Minneapolis/Wisconsin Dells): From I-94/I-90 East, merge onto US-51 South via Exit 132. Turn right on East Washington Avenue/US-151 South. Continue to follow East Washington Ave and turn right on North Webster Street. Turn left on East Dayton Street. Turn left on North Fairchild Street. Turn right on West Washington Avenue. Hyatt Place Madison/Downtown is on the left.

Area Attractions for the Traveler- Plan to spend the weekend!

The Monona Terrace Convention Center and Hyatt Place are centrally located in Madison. They are in walking distance to the Capitol Square and Madison’s famous State Street – featuring over 200 unique establishments to explore. The hotel is a short distance to the beautiful University of Wisconsin-Madison campus and 5½ miles from the Dane County Regional Airport.

Weekend Events:

  • State Street – Maxwell Street Days
  • Farmer’s Market
  • Dane County Fair
  • Opera In the Park, Garner Park
  • Paddle & Portage

Free Sites You May Want to Visit:

  • State Street
  • Wisconsin Historical Museum
  • UW-Madison Union Terrace
  • Henry Vilas Zoo
  • Olbrich Botanical Gardens
  • Overture Center for the Arts
  • Wisconsin Veterans Museum
  • Madison Museum of Contemporary Art
  • UW-Madison Chazen Museum
  • Wisconsin State Capitol Tours (Meet at the Information desk, Friday 9, 10, & 11 a.m., 1, 2, 3, & 4 p.m and Sundays at 1, 2, & 3 p.m. )

For more information about Madison visit these websites:

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