CHD Wreath by MLH of Puget Sound

December 8, 2011
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CHD Wreath by MLH of Puget Sound

This wreath, “A Work of Heart”, was created to be auctioned at Festival of Trees, annual fundraiser for Mary Bridge Children’s Hosptial. Families from Mended Little Hearts of Puget Sound helped make the ornaments and Diane Zook designed and assembled the wreath. Diane represents Mary Bridge Pediatric Heart Center and MultiCare’s Research Institute. Mended Little Hearts Puget Sound can not thank her enough for all of her support and enthusiasm.

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Take Action Today – Email your Members of Congress

September 14, 2011
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Congenital Heart Disease Briefing On Monday, September 19th, Mended Little Hearts will be joining with several other leading patient and professional organizations for a unique opportunity to educate Congress regarding the life-long needs of those living with congenital heart disease. EMAIL your legislators to remind them to attend this important event. 1)   Find your members at: a.    http:// Senate.gov b.    http:// House.gov 2)   Begin completing their online contact email form, and/or write a separate email to the legislative aide for health using an address you may have previously received. 3)   Insert personalized paragraph 4)   Send Your personalized paragraph should include: (feel free to cut and paste into your paragraph, adding your own details) How congenital heart disease affects you: I was born with a heart defect. My child was born with a heart defect. I work closely with those affected by congenital heart disease. Encourage them to attend the Congenital Heart Disease Briefing The Briefing is sponsored by the American Academy of Pediatrics. Co-sponsored by: Adult Congenital Heart Association, American College of Cardiology, American Heart Association, Children’s Heart Foundation, Congenital Heart Information Network, Kids With Heart National Association for Children’s Heart Disorders, March of Dimes, Mended Little Hearts, National Birth […]

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Pulse Oximetry Screening: An In-Depth Look at the Issues

July 14, 2011
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Pulse Oximetry Screening:   An In-Depth Look at the Issues

Pulse Oximetry Screening:  An In-Depth Look at the Issues Join us for a Webinar on Tuesday, August 23 8pm -9pm EDT This webinar is second in a series of three and is designed to give an in-depth look at issues surrounding pulse oximetry screening so that advocates can effectively communicate with their legislators.  Like the first webinar, this is for both new and experienced advocates and for people who would simply like more information on this important issue.  Participants will: • learn to distinguish myths versus reality about pulse oximetry screening. • receive information about a successful multidisciplinary site implementation of pulse oximetry screening. • learn the tools necessary to communicate this information to their legislators to effectively advocate for pulse oximetry screening in their state. Featuring: Gerard Martin, MD, FACC, Children’s National Heart Institute Elizabeth Bradshaw, MSN, RN, CPN, Children’s National Medical Center Amy Basken, National Advocacy Chairperson, Mended Little Hearts   System Requirements PC-based attendees Required: Windows® 7, Vista, XP or 2003 Server Macintosh®-based attendees Required: Mac OS® X 10.5 or newer After registering you will receive a confirmation email containing information about joining the Webinar. Space is limited. Reserve your Webinar seat now at: https://www3.gotomeeting.com/register/788801926

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Save the Date – Webinar – Pulse Oximetry Screening: An Introduction to Advocacy Issues

July 9, 2011
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Save the Date   Mended Little Hearts has partnered with the American College of Cardiology to Present: Pulse Oximetry Screening:  An Introduction to Advocacy Issues   This webinar is designed for anyone who wants to learn more about pulse oximetry advocacy—whether you are a new or experienced advocate.  Participants will: learn what pulse oximetry screening is and what it isn’t. learn benefits of pulse oximetry screening and obstacles to effective use of pulse oximetry screening. be able to identify key issues of pulse oximetry screening occurring at the federal level and the state level.  be provided with tools to constructively advocate in their home district This webinar will take place on Tuesday, July 26, 2011 at 8:00 p.m. EDT, 7:00 Central, 6:00 Mountain and 5:00 Pacific.

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Mended Little Hearts coordinator named Fraternalist of the Year through National Mutual Benefit

June 23, 2011
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Mended Little Hearts would like to acknowledge and congratulate one of our outstanding coordinators. Congratulations to one of Mended Little Hearts wonderful coordinator’s that was named Fraternalist of the Year through National Mutual Benefit. Congrats Dixie Varns! Please take a moment to read the article here Read article here- http://www.nmblife.org/images/Summer%202011%20BN/Mending-Hearts-Changing-Lives.pdf

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Walking For Our Little Hearts

May 11, 2011
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Mended Little Hearts has become a strategic partner on a national level with the CHF and ACHA for the Congenital Heart Walks across the US this year!  We are thrilled to provide the CHD community with this incredible opportunity – 100% of the proceeds benefit congenital heart disease!!  Support for the Congenital Heart Walks will provide HOPE to those affected by CHD through education, support, awareness and research. Get involved – it’s easy!!  See below for a list of upcoming and recent walks – with over 18 walks this year, there just might be one nearby! Walk. Register to join a Mended Little Hearts Team at a walk near you. Raise donations and awareness and come spend an amazing day with the CHD community. Donate. If you can’t walk with us, please consider giving a financial donation to a MLH team in your area! We need the funds to keep doing what we do. These organizations are all amazing and they tirelessly work for the CHD Community through education, awareness, support and research.   Even a small $10.00 donation will help! Think you can’t make a difference? If 100 people across the country donates $10.00 that will add up to $1,000.00! Together we can make a difference! […]

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Our CHD Awareness Week Activities

February 7, 2011
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Today is the start of CHD Awareness Week and we wanted to share with you how our groups are celebrating and raising awareness around the country. The Rhode Island Chapter kicked off CHD Awareness Week with a  Kick-off event on Sunday, February 6th.  It’s Super Bowl Sunday so we are going with the whole tailgating theme – pizza, hot dogs, etc.  We have all our members requesting proclamations to have on display – and hopefully some presented by the government officials at the event.  We have invited our Governor, and are hoping he will come. We are also inviting local “celebrities” to help judge a logo contest for our group.  We will use the winner’s drawing for our t-shirts at our annual picnic -the contest that is open to all of our heart kids and their siblings.  MLH of Tucson is partnering with our local hospital for a blood drive.  MLH of Bowling Green has requested a proclamation locally and is still waiting to hear if we are going to be able to get a public signing. We are also going to the schools and read and do an activity in the classroom.  MLH Winchester-MLH Meeting Feb 8th, Chick-fil-a Spirit Night Feb […]

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It’s Official-Proclamations, Resolutions & Citations

February 6, 2011
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It’s Official-Proclamations, Resolutions & Citations

Our groups have been hard at work to make this the most successful CHD Awareness Week to date!  We offer a brief definition of terms; proclamation-a declaration, resolution-an adopted motion deemed important enough to be put in writing and citation-an official, formal public statement or award. No matter the term it all amounts to increased awareness and we have been fortunate enough to have cities, counties and states support our efforts.   Washington State Proclamation           City of Sacramento, CA      City of Zephyrhills, FL      Coventry, RI      State of Wisconsin Allegheny County, PA        City of Appleton, WI         State of  Maryland      Phoenix, AZ                            State of Virginia Resolution        Village of Victor, NY                   We will continue to update this list as they come in.

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Our own Donnie Wilson on the CHD Show with Jim Feretti!

February 5, 2011
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Our own Donnie Wilson on the CHD Show with Jim Feretti!

Jim Ferretti is a CHD dad who is working to raise awareness through a project called The CHD Show with Jim Ferretti. Here he interviews our own Donnie Wilson. Click here, The CHD Show-January 27, 2011 to listen to him talk about his son Jacob and their experience with CHD.

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