Posts Tagged ‘ Awareness ’

MLH Funds CHD Research for Heart Month

February 1, 2013
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As you may know, February is Heart Month and February 7-14 is Congenital Heart Defect (CHD) Awareness Week (officially recognized in many cities, counties and states).  We at Mended Little Hearts were thinking, “How can we make a bigger difference for children with CHD and their families this Heart Month?”  We thought a lot about what we were working so hard to create awareness for and why. One of the main things we create awareness for is CHD research funding, right?  We all know it is underfunded and therefore too many of our kids are having problems and some are becoming angels way too soon.  So, we decided to do something about it and fund research this year. We then decided that we didn’t just want to fund research in general, but we would pick a specific project–one that we felt was making a big impact.  We picked the Joint Council on Congenital Heart Defects’ Quality Improvement Collaborative as our project (https://jcchdqi.org/). You may ask, “Why did you choose that project over others?’  Good question.  Here’s why: It involves multiple sites (46 different hospitals participate–woohoo!) The JCCHD involves several great CHD organizations It has a direct impact on babies’ lives. Data is being […]

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Save the Date – Webinar – Pulse Oximetry Screening: An Introduction to Advocacy Issues

July 9, 2011
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Save the Date   Mended Little Hearts has partnered with the American College of Cardiology to Present: Pulse Oximetry Screening:  An Introduction to Advocacy Issues   This webinar is designed for anyone who wants to learn more about pulse oximetry advocacy—whether you are a new or experienced advocate.  Participants will: learn what pulse oximetry screening is and what it isn’t. learn benefits of pulse oximetry screening and obstacles to effective use of pulse oximetry screening. be able to identify key issues of pulse oximetry screening occurring at the federal level and the state level.  be provided with tools to constructively advocate in their home district This webinar will take place on Tuesday, July 26, 2011 at 8:00 p.m. EDT, 7:00 Central, 6:00 Mountain and 5:00 Pacific.

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Taking it to the TODAY Show

August 4, 2010
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Taking it to the TODAY Show

Watch the TODAY Show on Thursday, August 5, 2010 to see Angee and Riley! This past January, Angee Brock, a member and coordinator for Mended Little Hearts of Mississippi, discovered the TODAY Show’s “Everyone Has A Story” contest while looking for ways to spread CHD awareness.  Immediately, Angee knew this was the perfect opportunity to share her daughter’s story of her fight with CHD.  She wrote an essay and sent photos to paint the picture of their struggle to keep Riley alive, her treatments and surgery over the past two years, the ways she has found to help her cope and what she hopes and expects the future to hold for Riley. Two year old Riley is a CHD warrior, an adorable little girl with blond hair and blue eyes, an infectious smile and a stubbornness that helps her hold her own with three older siblings.  She has been through so much to survive her journey with CHD.  Angee is an amazing single mother who works hard to raise her four children and keep her youngest alive and healthy.  She is also very passionate about spreading awareness of CHD and helping other families who are traveling the same journey as her […]

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