Posts Tagged ‘ Congenital Hearts Disease ’

MLH Funds CHD Research for Heart Month

February 1, 2013
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As you may know, February is Heart Month and February 7-14 is Congenital Heart Defect (CHD) Awareness Week (officially recognized in many cities, counties and states).  We at Mended Little Hearts were thinking, “How can we make a bigger difference for children with CHD and their families this Heart Month?”  We thought a lot about what we were working so hard to create awareness for and why. One of the main things we create awareness for is CHD research funding, right?  We all know it is underfunded and therefore too many of our kids are having problems and some are becoming angels way too soon.  So, we decided to do something about it and fund research this year. We then decided that we didn’t just want to fund research in general, but we would pick a specific project–one that we felt was making a big impact.  We picked the Joint Council on Congenital Heart Defects’ Quality Improvement Collaborative as our project (https://jcchdqi.org/). You may ask, “Why did you choose that project over others?’  Good question.  Here’s why: It involves multiple sites (46 different hospitals participate–woohoo!) The JCCHD involves several great CHD organizations It has a direct impact on babies’ lives. Data is being […]

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Pulse Oximetry Screening: An In-Depth Look at the Issues

July 14, 2011
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Pulse Oximetry Screening:   An In-Depth Look at the Issues

Pulse Oximetry Screening:  An In-Depth Look at the Issues Join us for a Webinar on Tuesday, August 23 8pm -9pm EDT This webinar is second in a series of three and is designed to give an in-depth look at issues surrounding pulse oximetry screening so that advocates can effectively communicate with their legislators.  Like the first webinar, this is for both new and experienced advocates and for people who would simply like more information on this important issue.  Participants will: • learn to distinguish myths versus reality about pulse oximetry screening. • receive information about a successful multidisciplinary site implementation of pulse oximetry screening. • learn the tools necessary to communicate this information to their legislators to effectively advocate for pulse oximetry screening in their state. Featuring: Gerard Martin, MD, FACC, Children’s National Heart Institute Elizabeth Bradshaw, MSN, RN, CPN, Children’s National Medical Center Amy Basken, National Advocacy Chairperson, Mended Little Hearts   System Requirements PC-based attendees Required: Windows® 7, Vista, XP or 2003 Server Macintosh®-based attendees Required: Mac OS® X 10.5 or newer After registering you will receive a confirmation email containing information about joining the Webinar. Space is limited. Reserve your Webinar seat now at: https://www3.gotomeeting.com/register/788801926

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