Posts Tagged ‘ Education ’

Join Mended Little Hearts for a Live Twitter Chat to Kick Off CHD Awareness Week 2013

January 22, 2013
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February 7-14th is Congenital Heart Defect Awareness Week. 1 in 110 babies are born with a CHD, making it the number one birth defect. Join us on Thursday February 7th, 2013 at 1pm est for Live Twitter Chat as we Raise Awareness. We will be sharing CHD Facts and stories. Many people are unaware how common Congential Heart Defects are, if you or some one you know has been impacted by Congenital Heart Defects, join us and share your story. Every time we share our stories we are helping others cope, and we are closer to a day when everyone will know CHD and see a cure. You can find us on Twitter @MLH_CHD we will be using the hashtag #CHDAware, so look for that and use it to participate.

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Back to School ABC’s for CHD Kids

September 24, 2012
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Mended Little Hearts and CardioSmart have joined together to provide parents and caregivers of children who have congenital heart defects with some back-to-school tips. Most children are now officially back to school for the 2012-2013 school year.   Whether your child is in preschool or grade school, if your child has a congenital heart defect (CHD), there are a few things you may want to consider for the beginning of this school season.   Plan for Emergencies Written Plan:  Parents and caregivers want to be sure to communicate a plan for emergencies with the child’s school administration, teacher(s), and school nurse (if your school has one).  Work with your child’s cardiologist to create this plan.  It would also be helpful to get input from your child’s pediatrician or family practice doctor.  Although emergencies are unlikely to occur, having a written plan can make everyone feel more comfortable about caring for your child during the school day. AEDs and CPR: Parents and caregivers will want to ask their child’s school administrators if they have AED (Automated External Defibrillator) devices and how many people are trained in CPR (cardio-pulmonary resuscitation).  This is good information for parents to have.  You can encourage your school to be prepared […]

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Brittany Paquette is Surviving CHD

July 26, 2012
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Last week I announced our newest blog feature “Surviving CHD,” a blog series about our adult members with a lifetime of experience. We have an awesome group of adults who are excited to share with us. This week Brittany Paquette is our very first guess blogger in this new series. Brittany is the Teen Coordinator for one of our newest groups MLH of Portland Oregon. This may be a new group, but they have taken off running, participating in many community events. Meet Brittany Paquette: Hello my name is Brittany Paquette. I was born with Tetralogy of Fallot. I’m now 22 years old and have had 5 Open Heart Surgeries with more to come. I’m really passionate about Adult Congenital Heart Defect support. I grew up with the just the support of my family and friends. There was no such thing as a group like Mended Little Hearts. I want to incorporate as many teens and young adults as I can into Mended Little Hearts. I want to be able to give teens and young adults hope and be able to communicate with them about our struggles as CHD survivors. CHD is not something to hide from or be ashamed […]

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4th Annual CHD Symposium

June 25, 2010
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4th Annual CHD Symposium

July 16 & 17, 2010, Madison, WI Parents and Caregivers, come learn and network with other families of children with Congenital Heart Defects. Learn the latest in medical advances, how to navigate the insurance maze, growing-up with CHD and much more… Friday, July 16, 6:30 p.m. – 8:30 p.m., Ice Cream Social, American Family Children’s Hospital Saturday, July 17, 2010, 8 a.m. – 4:30 p.m., Conference, Monona Terrace and Convention Center Presented by: Mended Little Hearts and Saving Little Hearts American Family Children’s Hospital and the UW Department of Pediatrics With Additional Sponsorship from: Kohl’s, St. Jude Medical and the American Heart Association Cost: Because of the generosity of our sponsors, there is no cost to attend this conference. Meals: Some light snacks will be offered at the conference, however meals will be on your own. You are welcome to purchase a boxed lunch on site at the conference or go out for lunch at one of the many restaurants that are within walking distance of Monona Terrace. We apologize, but no outside food is allowed at the Monona Terrace Convention Center. Childcare: Complimentary childcare will be provided on site. Please be sure to let us know in advance if […]

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