Posts Tagged ‘ Jodi Lemacks ’

MLH Funds CHD Research for Heart Month

February 1, 2013
By

As you may know, February is Heart Month and February 7-14 is Congenital Heart Defect (CHD) Awareness Week (officially recognized in many cities, counties and states).  We at Mended Little Hearts were thinking, “How can we make a bigger difference for children with CHD and their families this Heart Month?”  We thought a lot about what we were working so hard to create awareness for and why. One of the main things we create awareness for is CHD research funding, right?  We all know it is underfunded and therefore too many of our kids are having problems and some are becoming angels way too soon.  So, we decided to do something about it and fund research this year. We then decided that we didn’t just want to fund research in general, but we would pick a specific project–one that we felt was making a big impact.  We picked the Joint Council on Congenital Heart Defects’ Quality Improvement Collaborative as our project (https://jcchdqi.org/). You may ask, “Why did you choose that project over others?’  Good question.  Here’s why: It involves multiple sites (46 different hospitals participate–woohoo!) The JCCHD involves several great CHD organizations It has a direct impact on babies’ lives. Data is being […]

Read more »

Little Hearts Hold Big Price Tags-

January 19, 2010
By
Little Hearts Hold Big Price Tags-

Congenital Heart Defects are among the most costly diagnosis for children. The highest average hospital charges accrued for infants were those with hypoplastic left heart and common truncus arteriosus, followed by coarctation of the aorta and transposition of the great arteries, according to a CDC study published in the January 19, 1997 issue of the Morbidity and Mortality Weekly Report. (http://www.medscape.com/viewarticle/551060) In the first 7 days of his life, my son, Nicholas, experienced 3 different hospitals, his first helicopter ride and open heart surgery, all to a tune of nearly $100,000. It only took nine months of discussions with the insurance company to get them to cover the majority of our expenses. Jodi Lemacks, President of Mended Little Hearts, was not so lucky. Her experience is representative of many families dealing with the financial devastation resulting from treatment of congenital heart defects. Jodi’s incredible journey has been documented by The Washington Post, in conjunction with the Kaiser Foundation, found here: http://tiny.cc/NTPFM Mended Little Hearts advocates for accessible, affordable, and adequate health care, providing the voice for the littlest heart patients of all. We partner with other organizations to address the need for insurance reform including elimination of lifetime caps, elimination of […]

Read more »